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What you need to know for 04/30/2017

Organizer dies, but Hannah's Hope fundraiser to go on

Organizer dies, but Hannah's Hope fundraiser to go on

Before Tom Adams died, he had a last wish to raise money for the foundation created six years ago to

Before Tom Adams died, he had a last wish.

The former Clifton Park resident and Shenendehowa High School alumnus wanted to raise money for the foundation created six years ago to help his friend, Hannah Sames, a 10-year-old girl from Rexford living with giant axonal neuropathy, a rare genetic disorder that causes a gradual decline in mental function and a loss of control over body movements.

Adams died of cancer last week, said Matt Sames, Hannah’s father and a co-founder of Hannah’s Hope Fund. Before his death, Adams had been planning a fundraiser for Saturday in Round Lake. The event, a motorcycle bike rally at The Mill Bar & Grill, will still go on, Sames said.

Registration begins at 9 a.m. at the mill, 2121 Route 9. The event begins at 10 and includes lunch and festivities from noon to 4 p.m. There will be live music, raffles, a silent auction and a cash bar.

The cost is $25 per rider and $10 per passenger. Attendees may pay at the door or in advance by using PayPal at www.hannahshopefund.org.

“He just met [Hannah] this summer and kind of fell in love with her,” Sames said. “He just wanted to do something for her, so we’re going to make sure it happens.”

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